Thursday, November 28, 2013

Giving Thanks


It is Thanksgiving in the United States again and this always seems like a wonderful time to give thanks for the people we love and those that support us tirelessly in our work. The list for us at Yellow House Children's is always quite long. So many people help us in various ways across our projects. But let me start here. Thank you to:

Rachael Gibson for her energy and dedication to the administration of our Kenyan projects. Rachael manages to take care of children, families, community members and related professionals while working closely with the Nairobi Speech Language Therapy (SLT) community AND managing Patrick and I in the United States to make sure she has the resources she needs to get the job done. 

David Rochus for his talents serving families and juggling 101 demands placed on him by the US end of the organization as well as the those in the Kenyan communities David works within. Since David joined us we have been nothing but impressed by his work ethic, thoughtful responses to all situations and his dedication to access and equity in rural service provision. 

Patrick Moran. As our legal counsel and president, Patrick has to put up with a lot of daily inquiries and demands, conversations and queries. He provides a quiet and continuous backbone to Yellow House Children's that occurs behind the scenes and often goes unacknowledged. Our 12 years of friendship is serving us well in this endeavour...  

Our Kenyan colleagues Silas Aguyo, Wellington Manyola and Martin Nafukho who have a special place in my heart. They were my support, my guides, my counselors and wise men for so many years that I have a favorite photo of the four of us in my home always. 

Our board members including: Abbie Olszewski, Tanya Gallman, Bev Applebaum, Karen Hesterman,  and Chris Merkley. Also to our newest additions Joanne Fry and Michelle Dillon who have both spent time in Kenya with Yellow House, with Joanne coming to our various districts and providing essential trainings in Augmentative Alternative Communication (AAC). 

Brian Kellett - you make everything we do look beautiful and official. I hope you will join us in Kenya one day. 

Jamie Kinder for recently making us books to sell, and hauling your children across states to be with us in Chicago. Your enthusiasm, input and voice sits behinds many small and sensible decisions. We love that you keep believing and growing the idea of what it may be possible for Yellow House to achieve. 

Stephanie Thompson for her tireless support of Yellow House. You have been our creative and talented fundraising hostess extraordinaire and we love you for it. You infuse our parties with grace.

Rachel Roszmann for her baking and cooking and continual willingness to make our parties tasty. 

Stef Fatone for her ongoing monthly donations! We love you.

John Kinder at Death's Door Spirits for your ongoing provision of gin and vodka, and the belief that a well proportioned cocktail supports an animated conversation. 

In Australia, Helen Staley is continuously supporting, listening, advising and fundraising for Yellow House in a plethora of small and large ways. 

Karra Nosworthy, also continues to help us raise money and awareness by selling bags and aprons (which both funds OUR programs and provides much needed income for Rukia's projects supporting the women who make the products on the coast, and Harry's youth who make the cards and metal goods in Kisumu). 

We are also thankful for the friendships and professional energies of Elizabeth Sada and Michael Terry and their role in our history as a growing and developing organization.  

As the districts we work in increases and the number of families we serve grows - our budget amazingly remains quite small (we are doing much more with much less!) - I am amazed at how far we have come since 2009 when Patrick and I first talked about this. 

I am incredibly blessed to be able to participate in this work and know that Yellow House is a global community project.
Bea

Tuesday, August 13, 2013

What we do ..


This week we really strove to define.. what is it we do?? Here is the answer .. 






Thanks Brian Kellett for your design work. 

Full Speed Ahead..

Today I was looking over the power point presentation that the Yellow House team are going to deliver at the Fifth East African Conference on Communication Disorders in Mombasa in early September, and I realised JUST HOW MUCH WORK Yellow House and those affiliated with the organization are doing! What struck me also was just how far we have come in the past couple of years. Our current programs cost a lot less, and do a lot more than the Mombasa Children's Therapy Clinic (which we started but are no longer affiliated with) was able to manage and I think this is because so much of the current work is fully integrated into existing structures (eg. the hospital, the EARC system). While a center based model is appealing, and gives you lots of control, it doesn't allow non SLP professionals to SEE our work in action and begin to learn/understand what speech communication therapists can bring to the table as a part of a multi-disciplinary team.

We have much to do on this end, in the United States particularly in terms of raising funds for the 2014 programming, but taking stock, I feel so amazed at what David Rochus and Rachael Gibson have achieved in the past few months. 

Saturday, August 10, 2013

Old Newsletters, New Newsletters..

Time has gotten away from us this year!

Though our work in Kenya is more focused and productive than ever before, on the social media/informing end of things I have fallen behind. Writing the summer newsletter has been on my mind!

Anyway, as I work on this tonight, I am reminded of the February newsletter we never really finished  So here it is .. as far as we got.. in all its glory. I do like to reflect back this to see how far we have come in the past 6 months. 


Yellow House Children’s Services Newsletter
Winter 2013 

  

Rachael Gibson qualified from Birmingham City University with a BSc Hons in Speech and Language Therapy in 2007. She has been affiliated with Yellow House Children's services since May 2011, working alongside others in developing speech and language therapy programming in Vihiga.

Though Rachael has spent the last six months back in Britain, she will be returning to Vihiga in April 2013 in a new capacity to support Yellow House programs in Western Kenya.

In her time in the UK Rachael has raised $4,000 from generous friends and family through an online fundraising platform website called Indiegogo. There were incentives for donors to receive jewelery from MUDSTEP (Mumias Disability Sustainable Training and Empowerment Project) or artwork from Kenyan artist Edward Orato, as well as just cash donations. This money is going to be used by Rachael to provide free speech and language therapy services across Vihiga district. 

Rachael has been featured in her local newspaper, interviewed by her local radio station and has been contacted by a publicist who wants to write an article about her work in Kenya for a national magazine.. all of course are promoting the Yellow House name!(how cool!)

When Rachael gets back to Kenya her role will include the development of volunteer programs for Yellow House, hoping to generate more of an income through volunteers, including students and qualified health professionals. Rachael’s own clinical work will focus on training community health workers about early language development as well as supporting families who have children with special needs. Rachael will also continue to work with mainstream schools, and toincrease awareness about disabilities with a goal of increasing the acceptance of children with special needs into regular classroom programing.

We are excited about Rachael’s plans and look forward to her updates in the year ahead. If you would like to support Rachael’s work, you can put her name in the note section of your donation via paypal (be sure to provide a link here)
_______________________________________________________________________

Pambazuko Disability Initiative
By Elizabeth Sada Terry

Pambazuko Disability Initiative is a registered community-based organization, which was started in April 2012. It was founded by a group of individuals with varying professional backgrounds; who are all passionate about special needs education, rehabilitation and community development and its membership includes individuals with disabilities, and caregivers of children with disabilities.

The vision of Pambazuko is for a society that respects people with disabilities and individual differences, while promoting inclusive communities. Our mission is to improve the live of people with disabilities by supporting them and their families with the knowledge and skills to realize their potential and exercise their rights as relates to education, health and development.

With the help of Yellow House Children’s Services and other community partners we have been able to carry out some initial awareness raising activities within Kilifi Township and Takaungu. We are currently identifying community structures with which we can identify children with disability, then assess and support them through community-based programming. Established structures include schools (primary, nursery and special units), community health worker networks and local leaders. We also carry out a baseline survey to ascertain the caseload and needs level in the community. We plan to build our service provision capabilities by developing the skills of other service providers within the community to ensure sustainability of the programs.  


Community Health Partnership in Collaboration with the East African Center

It is a global phenomenon that disability and poverty are closely related. While poverty and disability are both multi-dimensional and context specific social issues, research shows that outcomes can be changed by improving access to maternal and child health care. This year, Yellow House Children’s Services will be working in conjunction with The East African Center in Takaungu to fund a community-based health team which can support not only the basic health needs of families in the area, but also play a role in the early identification process of children with special needs.

Community health workers help families make and keep their child's health related appointments as well as provide follow-up for home treatment programs. For 2013, we have agree to provide $6,000 to pay the monthly salary for two community health workers and a lead medic This money will also pay for 2 bicycles and provide a small fund to pay for families to travel to Kilifi for assessment at the EARC or therapy services at the district hospital. 



How can you help?

We need to raise an additional $8500 to pay for programming in 2013.

This money will support:
-       The monthly salary of a Kenyan secretarial assistant in Mumias who will be responsible for helping the very busy clinical team write activity reports and grants, as well as petition the local authority about needs for children with disabilities. They will be responsible also for organizing and maintaining Mumias’ resource center and library.
-       The monthly salary of Elizabeth Sada Terry  ($300/month) as she gets the Pambuzuko Disability Initiative up and running in Kilifi, as well as supports the Health Care Initiative we have committed to in conjunction with the East Africa Center in Takaungu.
-       The monthly salaries for three health care workers in Takaungu
-       Bicycles for the health care initiative
-       A small stipend ($100/month) for Rachael Gibson to support her position as Volunteer coordinator.
   
All of the money raised goes to support programs for children with disabilities in Kenya. All tax-deductible donations can be made through out website at

·      Please give generously
·      Please plan to attend our fundraiser in Chicago this April 13, 2013
·      Please purchase a t-shirt through iheartgarments.com
·      Please like us on facebook
·      We are also looking for anyone who might be able to provide design or technology support for our website

Wednesday, March 20, 2013

Speech Language Therapy in East Africa: Developments in the Region



Bea Staley
This article was published in S&L World (February 2013)

Rehana Pasta, Nuala Alibhai and the organizing committee for the fifth East African Conference on Communication Disorders to be held in Mombasa later this year recently put out a call for papers. Mombasa -- is a city on the Kenyan coast, an urban hustle and bustle of a town that is hot, diverse and swims with a brightness like few other places. The heat pervades everything. The air swirls with a complex array of smells and sounds. Conversation is everywhere. Language buzzes: Swahili, English, Giriama. The days are bright; the sky is blue, but like clockwork each night the light leaks out at six pm, leaving seven pm a mass of stars or clouds against the dark of night. Twelve hours later, six am begins in darkness and seven am arrives in day. The call to prayer announces it; the clamor of traffic amplifies it; another day has begun. Bless the routine of equatorial light.
I first went to Kenya as a speech language therapist (SLT) in 2006 and relocated there in 2007 with Voluntary Services Overseas to work on a European Union funded project that supported the training of special education professionals in the area of communication disorders. As I plan for the upcoming conference later this year, it is impossible not to ponder the regional developments of the profession in the last seven years.
This article presents the new training programs slated to start in the region in 2013, reflects on how the East African conference has changed over the years, and touches on the more global discussions about the SLT profession taking place at large national conferences.

Introducing the New East African SLT Training Programs
In early 2008, Makerere University in Kampala, Uganda, began their SLT degree program, which has successfully graduated two cohorts of therapists who now work in Uganda, Kenya, Rwanda and Tanzania. This year there are plans underway to begin three more regional programs as a result of collaborations between foreign organizations and East African universities.
Shannon Benton and CLASP International, in conjunction with Kenyatta University in Nairobi, will be interviewing candidates this April for enrollment in a Masters program planned to start in September 2013. Based on a model developed in Zambia, CLASP conducts much of its classroom-based learning with online real-time lectures taught by professors at universities in the United States. Students participate in two years of online learning, supplemented by a variety of clinical rotations provided by visiting teams of clinicians. Students then complete a one-year clinical fellowship and spend three years working in a government SLT position, whilst also instructing the cohort that follows. This is a model that requires government support and a commitment to fund positions for the graduates of the program. Discussions with the ministry are still in negotiation, but government support is an important part of the CLASP model and reportedly one of the biggest stumbling blocks for fledgling programs in developing countries. 
Another program that is anticipated to start in the next Kenyan academic year will be a Masters program at Moi University in conjunction with Sweden’s Linköping University. The curriculum has been submitted to Moi University for approval and will be run by faculties of both institutions.
 In addition, a third program is being developed by a partnership between the SLT department at the University of Hanover and the special education program at Sebastian Kolowa Memorial University in Lushoto, Tanzania. This Masters level program focuses on SLT for children with special needs and will be supported with visiting lecturers from Germany.

The East African Conference on Communication Disability
As I revisit Dr. Jochmann’s (2006) writings about her work as an SLT in Uganda, I reflect on how much and yet how little has changed ‘on the ground’ over the years. Although I wasn’t present at the first conference Jochmann’s (2005) report indicates that six (of the seven) then practicing East African based SLT’s met for five days to discuss the challenges of the providing SLT services in the region, and well as share expertise.            The second conference took place at Nairobi Hospital in September 2008, organized by Elisabeth Scheltema-Kruger and several other Nairobi based therapists, myself included. By this time, there were eight to ten SLT’s practicing in the region. This conference was attended by a small group of American professors who provided professional development in their areas of expertise to a group of approximately 20  SLT clinicians and related professionals (e.g. doctors, nurses, special educators, occupational and physical therapists).
The third conference took place the following year organized by Emma Shah and Laura Gomersall. It was hosted at Aga Khan Hospital in Nairobi and included a different group of foreign therapists and professors who provided continuing education opportunities to the audience of 20 to 30 participants.
A tension arose at both Nairobi conferences between educating and informing local non SLT professionals about the work of SLTs and providing professional development for practicing SLTs in the region. This tension was managed by 1) covering different topics on different days and 2) advertising different days to different audiences so that the conference might better appeal to a wide variety of interested attendees.
Given the enormous amount of time and energy required to organize the conference by the small pool of clinicians (there are still only 13 SLT’s practicing in Kenya) who were busy treating their own caseloads, a decision was made following the third conference that it would be a bi-annual event.
By the time the fourth conference rolled around in January 2012, the first cohort of SLTs had completed their program at Makerere University and the Association of Speech and Language Therapy East Africa (ASaLTEA) had been established in Uganda with the intention of being a regional association. Eighty-two participants from 15 different countries gathered in Kampala for the conference. Organized by Helen Barrett, Makerere’s course coordinator, the program included research presentations by the Makerere graduates as well as papers from international guests and related professionals.
This conference had a different tone to prior conferences in part due to the increase in size of the audience and the increase in the number of SLTs in the region. Discussions included issues related to the logistical future of the field and the ways SLTs might provide appropriate service provision for local populations in local contexts. Conversations acknowledged that SLT practices as taught in university programs and implemented in clinical settings are typically based on foreign research, resources and views of child development that might not be applicable universally. The fifth conference plans to build on these discussions with a focus on implementing culturally appropriate SLT practices in East African contexts. 
Contextualizing the Development of the Profession
East African conversations and changes in the profession have taken place within the context of notable growth in discussions about SLT practices beyond Western borders, particularly in regards to the sprouting of new programs in developing countries supported by American and European universities. For example:
·      The program committee of the 2011 American Speech and Hearing Association’s (AHSA) Annual Convention sponsored a panel on “SLP University Programs in Developing Countries: Culturally Sustainable Approaches” (McLeod et al. 2011), which focused on the success and risk factors for new programs. For example, included speakers shared their experiences about the programs at Pham Ngoc Thach University of Medicine in Vietnam, and Universiti Kebangsaan Malaysia (National University of Malaysia). 
·      The Council of Academic Programs in Communication Science and Disorders (CAPCSD) held a Global Summit on Higher Education in Communication Sciences and Disorders preceding their annual conference in 2012 that included presentations by professionals from a wide variety of countries.
·      The Asia Pacific Conference on Speech, Language and Hearing in 2013 will focus on “globalization and localization of the discipline.”
·      The International Journal of Speech-Language Pathology recently published a scientific forum with a lead article on “Changing practice: Implications of the World Report on Disability for responding to communication disability in under-served populations” (Wylie, McAllister, Davidson & Marshall, 2013) and a series of articles discussing the growth of the profession in various countries around the world. 

For the past twenty years Kenya has been home to the majority of SLTs living and working in the region. With the new program in Lushoto and Ugandan graduates now residing in Dar es Salaam, Tanzania, and Kigali, Rwanda, we may be seeing the emergence of a trend by which the distribution of the profession slowly changes. Hopefully this will include clinicians moving beyond urban centers into rural settings where the needs of individuals with communication disabilities are largely unmet. While the number of clinicians still remains small compared to the relative needs of the population, the developments outlined above reflect the results of many years of hard work by SLT professionals both locally and internationally. We hope you will join us in Mombasa this September to be part of the ongoing activities in the region.


Call for Papers for the 5th East African Conference on Communication Disability is now open. Please see http://www.sltkenya2013.blogspot.com for more information.   

References:
Jochmann, A. (2005). Speech and language therapy in East Africa: 
The first East African speech and language therapy conference in January 2005 in Nairobi. Retrieved from http://www.cplol.eu/files/East%20African%20SLT%20conference.pdf

Jochmann, A. (2006, February 07). Speech and Language Treatment in East Africa. The ASHA Leader.

McLeod, S., Staley, B., Wylie, K., McAllister,  L., Bleile, K., Marshall, J., Atherton, M., 
Wickenden, M., & Ahmad, K. . (2011). SLP University Programs in Developing Countries: Culturally Sustainable Approaches. . Paper presented at the American Speech Language Hearing Association Annual Convention. San Diego, CA.

Wylie, K., McAllister, L., Davidson B., & Marshall, J. (2013). Changing practice:
Implications of the World Report on Disability for responding to communication disability in under-served populations. International Journal of Speech-Language Pathology, 15(1), 1-13.


Contacts for the Speech Language Therapy training programs:
The program at Kenyatta University, Nairobi, Kenya: Shannon Benton (shannonbenton@claspinternational.org) or CLASP’s website at  www.CLASPinternational.org

The program at Moi University, Eldoret, Kenya: Hillary Sang (hillarysang@yahoo.com) or Anita McAllister (anita.mcallister@liu.se)

The program in Lushoto, Tanzania: Project supervisor Prof. Dr. Habil. Ulrike Luedtke (ulrike.luedtke@ifs.phil.uni-hannover.de) or project coordinator Ulrike Schuette, (ulrike.schuette@ifs.phil.uni-hannover.de)